The Program
The Global Fund Round 4 and Round 6 programs contribute in improving
survival and quality of life of people living with HIV/AIDS and reducing
its transmission with a focus on reducing morbidity and mortality
associated with HIV/AIDS.
Round 4 - Access to Care and Treatment (ACT)
The ‘Access to Care and Treatment (ACT)’ program is being
implemented in the six high prevalence states of India - Tamil Nadu,
Andhra Pradesh, Karnataka, Maharashtra, Manipur and Nagaland. The
program is for 5 years (2005-2010) and is currently in its Phase II of
implementation.
Partners in the Round 4 Program
Indian Network for People living with HIV/AIDS
INP+ is the national network for People Living with HIV/AIDS.
INP+ is involved in implementing both the Rounds of the Global
Fund to provide care and support services to PLHAs. INP+ has to
establish 130 District level Networks (DLNs), 50 Treatment Counseling
Centers and 16 Positive Living Centers in the six high prevalence
states.
Freedom Foundation
Freedom Foundation, a Trust formed under the Indian Trust Act, in
Bangalore, Karnataka has been working in the area of comprehensive
care and support in India. In the Round 4 ACT program, Freedom
Foundation has to establish 4 Comprehensive Care and Support
Centers (CCSC). The services available at these centers include clinical
management, palliative care, psychosocial and nutritional support.
EngenderHealth Society
EngenderHealth Society (EHS) is a registered Indian NGO affiliated to
EngenderHealth. EHS is responsible to build the capacity of service
providers - peer educators who are people living with HIV/AIDS, social
workers, counsellors, health care staff and outreach workers within the
program, 160 NGO staff in home based care and to establish Continuing
Education and Training Centers in the states of Tamil Nadu, Karnataka
and Manipur.
Confederation of Indian Industry
CII is a non-government, not-for-profit, industry led and industry
managed organization. CII is responsible to advocate with private sector
for setting up 10 ART centres. CII has facilitated the establishment of
6 ART centers. These centers are providing counseling, opportunistic
infections management and ART services.
Other than 4 core sub recipients in the Round 4 program, PFI has sub
contracted St. Joseph Leprosy and HIV/AIDS Care Center at Tuticorin,
Tamil Nadu, Development Association of Nagaland at Dimapur, Nagaland
and Meetei Leimerol Sinnai Sang (MLSS) at Imphal, Manipur to establish
Community Care Centers.
Round 6 - Promoting Access to Care and Treatment-
(PACT)
The ‘Promoting Access to Care and Treatment (PACT)’ program
is being implemented in eight highly vulnerable states of India, Uttar
Pradesh, Madhya Pradesh, Bihar, Rajasthan, Gujarat, Chattisgarh, West
Bengal and Orissa. It has a project cycle of 5 years (2007-2012), and is
currently in its Phase I of implementation (2007 – 2009)
Partners in the Round 6 Program
Indian Network of People Living with HIV/AIDS
In Round 6 Program, INP+ has to establish 100 DLNs in the states of
Rajasthan, Uttar Pradesh and Madhya Pradesh.
Hindustan Latex Family Planning Promotion Trust (HLFPPT)
HLFPPT is responsible for managing 24 Community Care Centers
(CCC) in the states of Uttar Pradesh, Madhya Pradesh and Rajasthan.
Catholic Bishops’ Conference of India (CBCI)
CBCI is responsible for managing 45 community care centers in the
states of Bihar, West Bengal, Orissa, Chhattisgarh and Gujarat.
The CCCs in these states are linked to the ART centers. The CCCs
manage minor opportunistic infections (OIs) and counsel for adherence
to Anti-Retro Viral Treatment (ART).
Case Story-1
Vaishali (name changed) was married when she was 17. She had
a son after 3 years and was happy with her life. After 6 years of
marriage, her husband was found to be HIV+. He was extremely
depressed and soon succumbed to death. Vaishali was shattered.
Her family rejected her. She was also tested positive but her son
was not infected. She struggled and finally came out of depression.
Though rejected by her in-laws, she was supported by her parents.
She stayed with them and completed her studies. She came in
contact with Ms. Karuna, peer counselor, who introduced her to
Network of Maharashtra for People Living with HIV/ AIDS. She
joined the network as a peer counselor and desires to educate her
son. She faced many instances of discrimination and a lot of financial
problems. However, she was unperturbed and now lives a confident
life for her son. She is on ARV treatment and is living positively
with HIV over the last 11 years.
Case Story-2
Aruna (name changed) is a widow and living with HIV. After knowing
her status and the death of husband, Aruna’s in-laws separated her
from her child. They feared that the child may get infected from
her. She approached Bijapur DLN in Karnataka with the hope of
getting justice. The District Level Network Officer went to her in-
laws house and tried to convince them to accept her, but they didn’t
agree. Then DLN members along with Aruna decided to take up
this issue with the local court. Out of fear of court action, the family
agreed to give Aruna’s child back. After repeated counseling by the
DLN members, the family accepted her and her child. Now they are
all staying together happily.
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Program Updates (April –September 2008)
IEC Material Development
PFI has developed communication materials for the use of peer educators
in the program. The content and messages were shared and pre-tested
in specific regional locations. The communication materials consist of
two flip books, four handouts and a diary for peer educators.
Exposition
Expositions were conducted in the states of Tamil Nadu, Maharashtra,
Karnataka, Andhra Pradesh, Nagaland and Manipur. Over 100 PLHAs
from District Level Networks participated in the state level exposition
between April and July 2008. The events provided a platform for DLNs
to develop a better understanding on issues of access to care and
treatment, share learnings and promote the concept of positive living.
Advocacy Workshop in Jodhpur, Rajasthan and
Darbhanga, Bihar
PFI along with Rajasthan AIDS Control Society (RSACS) organized
a workshop in Jodhpur on 25th May 2008. The meeting was chaired
by Mr. Tara Chand Meena, Additional District Magistrate. 48 district
and block level officials from Departments of Health, Women and
Child Development; representatives from PRI and NGOs attended the
meeting.
Another workshop was organized in Darbhanga, Bihar on 26th September,
2008. It was inaugurated by Honourable Dr. Bhola Singh, Minister,
Urban Development, State Government of Bihar and chaired by Mr.
Arun Prasad, District Magistrate, Darbhanga. Ninety two participants
including Member of Legislative Assembly, District Development
Commissioner, Additional District Magistrate, PRI representatives,
Block Development Officer, Child Development Project Officer –ICDS,
Block Medical Officer-Health, ART Doctor and NGOs participated
in the meeting. Basics of HIV/AIDS, services for prevention, care and
support, and the potential role of PRI in addressing HIV/AIDS, especially
in context of NRHM and NACP III were discussed.
Interaction meetings
Interaction meetings were conducted with district stakeholders in
Round 4 and Round 6 program states. These meetings aim to bridge
the gap between PLHAs and providers. The meetings were attended by
DLN members, ART centre staff, District T.B. Officer, ICTC In-charge
and counselors, Human Right Law Network, Adhyaksha of Zila Parishad,
family members of the PLHAs and other organizations working on the
issue of HIV in the district.
Operationalizing COPE package
Client-Oriented and Provider-Efficient popularly known as COPE®
is a package of participatory Quality Index (QI) tools and approaches
developed by EngenderHealth for improving quality of health care
delivery in low resource settings.
Pre-testing of COPE tools was undertaken at CCSC in Guntur and
PLC in Prakasam, Andhra Pradesh in September 2008. EHS is planning
to implement COPE tools at seven service delivery points in the ACT
program.
Honorable Dr. Bhola Singh, Minister, Urban Development, Government of Bihar
addressing the workshop
“People used to stigmatize me before I joined DLN. After joining DLN I started giving my testimony TV, radio and
newspaper. Now people in my locality have stopped pointing fingers at me”.
Thoibi, DLN Board Member, Thoubal DLN, Manipur
“Support group meetings encouraged me to adhere to drugs and live a healthy life.”
Mushfique Ali Ujjain DLN, Madhya Pradesh
“Now I can rely upon myself due to network”.
Kailash Patel Ujjain DLN, Madhya Pradesh
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